Lily is happier today, now that the anesthesia has left her system. She is having trouble sitting up from a lying down position and taking the steps up from our family room to the kitchen. She is notably subdued, wants to be held and is sitting quietly to watch tv. I am kind of enjoying this calmer version of Lily.
I had a friend tell me that I seem to take this all in stride as I was describing all of the medical care Lily has had and will have. The truth is, I don't take it in stride :-(. It is very very hard emotionally and physically to go through these things with your child :-(. I have been more stressed and anxious is recent months than ever before. I catch myself worrying about all of Lily's future procedures, her speech therapy and early intervention therapies, and more.
Of course there is so much joy and sweetness that makes it so worth it. It is absolutely a privilege to have a little person grow to trust and love you. The best.
And the Lord is holding us together and sustaining us. Today has enough worries of its own. Another friend reminded me that we need to daily surrender ourselves (and our children) to Him, and also when trials or difficulties or bad news comes, the Lord is not surprised by any of it. He knows and will be there through all of it.
In a couple of weeks Lily will have her appointment with the Cranio facial team at Ucsf again. It will be the first time Dr. Hoffman, her plastic surgeon, will see her healed palate. Please pray for this as Dave and I suspect that a fistula (or fissure) has formed near her gum line :-(. If that is so, it means a second palate repair sometime this year. We are not sure of course since (1) Lily doesn't let us look too long in mouth and (2) we don't quite know what we are looking for or how it is supposed to look. So there is a chance that everything is actually ok. I pray that that is so, but if not, I remind myself of what I wrote in the previous paragraph.
What are those wounds around the tummy?
ReplyDelete--Linda Lee