Today we began the first of three appointments for Lily this week. Today she had her ENT follow up. The placing of ear tubes in December was rather overshadowed by her palate surgery, but yes both procedures had been done in one fell swoop.
The good news is that her left ear looks great. The bad news is that the tube in her right ear has fallen out already. It was confirmed that she has fluid in that ear again which means she has dampened hearing in that ear. :-(
The good news is that research has shown that normal hearing in one ear is enough for non school age children to acquire language and speech. Hopefully the other ear tube will stay in longer.
Tomorrow we are off to the pediatric surgeon. Lily has hernias that need to be surgically repaired. It is just a consultation tomorrow, and I will report back with more info.
Please pray for Lily. And me. I feel anxious thinking about all the medical stuff! Thursday we meet with early start in Santa Clara county to have her speech evaluated.
Photos of our trek in San Francisco and then of the happy patient :-). She was not thrilled though with someone looking in and probing her ears.
Tuesday, February 7, 2012
Saturday, January 28, 2012
Something Hard
Yesterday something happened that was difficult - I am still thinking about it this morning, and it is eating at me.
We were at our homeschool co-op, and while Matthew and Nene were in their classes, I was out in the playground area with Aaron and Lily. They were playing, each doing their own thing, and the weather was beautiful for January! I saw on a step and watched them. Aaron was climbing up and down a play structure, and Lily was going to town with the wood chips that carpet the playground area. Not throwing them, but having fun digging her hands in and letting them trickle out of her hands. Periodically she would make an inquisitive sound and look at me, and I knew she meant, "Look Mama! What is this stuff?"
There were a few other children out there, part of the childcare that goes on while their siblings and parents go to class. Lily and Aaron don't go to the childcare, but I could write another post about that (nothing wrong with the childcare, just trying again to bond and attach with Lily - she is not ready to be left with anyone else at this point).
All of a sudden, this little boy starts walking towards Lily (who is still busy playing with wood chips). He comes right up to her, and pushes her chest with his hand.
I observe, and am unsure about what his intent was. I could not quite believe what I just saw.
Then, the boy makes a little circle and comes back towards Lily, and now comes and pushes her AGAIN - this time with his foot.
He starts to go behind Lily and I can see that more will come if I do not intervene.
I close the gap with a few quick strides and I tell him, "Don't push her." I try to bring him over to me by putting my arm around him, but he is trying to squirm and run away. I hold him firmly and say, "Do not push her. You would not like it if someone bigger than you came over and was pushing and hitting you."
No apology, no eye contact - he wanted to run away, and I let him.
My blood was boiling. I was so enraged and saddened. Silly, right? Probably a 3 or 4 year old. Kids don't have as much maturity or discernment or inhibition. Yes, I get that. No big deal, right? Just shrug it off - kids are kids. But I was MAD.
It makes me so mad to think about anyone being mean to Lily. To any of my kids for that matter, but especially her. And questions spiral within me. Since the boy didn't tell me (and I didn't ask), I wonder, "Why?" Why are you picking on her? Is it because she is smaller than you? Is it because she is the "new kid" as she is not usually out there with them on the playground? Is it as simple as that? Or is it because she looks different? Is it because her nose and mouth look different? Is it because she has a scar? Is it just because it would be interesting to get a reaction?
It made me mad that the world is not a good place. That even in a place I usually feel very safe, I can see how life can be for my children, and especially for my daughter. And you know what, later something similar happened again. Different culprit, though. In the middle of lunch, this time a little girl came over and kicked wood chips onto Lily. Through all of these incidences, Lily was not aware that people were being unkind to her. And I felt thankful for that, and yet fearful, too, of the day she realizes that she looks different from other people.
To be fair, I am sure that if the parents of these children had seen these things happening, they would have intervened. But you know how it is at the playground during lunch hour and how zooey it can get. I know that I cannot watch each of my children 100% all of the time and eat my lunch and talk to other moms at the same time.
When I look at Lily - I can see how beautifully she is doing. She is growing in every way. Learning to love, learning to trust. I have seen her small, malnourished, and tense body fill out and relax little by little. Her smile is infectious, and her eyes are inquisitive, bright, and look at all of us with wonder and adoration.
However, when I change her diaper, I see those scars on her bottom, and on her thighs. Again, it makes me think of how neglected she must have been to have full thickness scarring from diaper rash. How she must have been left in a dirty diaper for hours and hours. How much it must have hurt. How tiny she was when it happened. How nobody responded to her pain. And I want to just scoop her up and tell her, "No more pain, Lily. No more pain."
But then yesterday happened. And it makes me think about how I cannot promise her that. I will not always be there to protect and shield her from it.
What can I do? I know that she is the Lord's. I know that I will now always be there with her when things come up, but He will. As she grows up, she will undoubtedly encounter more questions, and teasing and cruelty because of her differences. The unkindness of human nature and this world just reinforces how we need the Lord.
And even for my other children, too. Because let's face it - we have ALL endured feeling different for any little thing. Not just what we look like, but our dress, but our interests, our beliefs. . .
Oh, and pray for me, too. Boy do I need the Lord to navigate through all of this stuff. And I am sure there is more to come. One gentleman I know with grown children once told me that through the trials and pain of parenting, "The Lord is making me into a *real* Christian."
There was a bit of comfort though.
Towards the end of lunch, I saw Lily on the blacktop, sitting joyfully with a big rubber punch ball, and with Nathan and Nathan's friend Ellie flanked on either side of her. I could hear Nathan explaining to Ellie all of the things that Lily likes to do and can do now. Ellie was smiling and nodding. They made a small, strong unit. I felt reassured and thankful.
I feel a bit better now that I have written this out. I have been interrupted twice since I began my post in the early morning when everyone was still sleeping. Now, Lily is sitting on my lap in her fleece footie pajamas. Her brothers are running around making a slide with all of the pillows and mats we have in the house. I just heard Aaron say, "And Lily can go on it, too! But it might be too dangerous!"
Matthew replied, "Just hold it up! We need more stabilizers!"
Thank the Lord for the mercies of these fun, sweet moments to encourage me through the harder parts :-).
We were at our homeschool co-op, and while Matthew and Nene were in their classes, I was out in the playground area with Aaron and Lily. They were playing, each doing their own thing, and the weather was beautiful for January! I saw on a step and watched them. Aaron was climbing up and down a play structure, and Lily was going to town with the wood chips that carpet the playground area. Not throwing them, but having fun digging her hands in and letting them trickle out of her hands. Periodically she would make an inquisitive sound and look at me, and I knew she meant, "Look Mama! What is this stuff?"
There were a few other children out there, part of the childcare that goes on while their siblings and parents go to class. Lily and Aaron don't go to the childcare, but I could write another post about that (nothing wrong with the childcare, just trying again to bond and attach with Lily - she is not ready to be left with anyone else at this point).
All of a sudden, this little boy starts walking towards Lily (who is still busy playing with wood chips). He comes right up to her, and pushes her chest with his hand.
I observe, and am unsure about what his intent was. I could not quite believe what I just saw.
Then, the boy makes a little circle and comes back towards Lily, and now comes and pushes her AGAIN - this time with his foot.
He starts to go behind Lily and I can see that more will come if I do not intervene.
I close the gap with a few quick strides and I tell him, "Don't push her." I try to bring him over to me by putting my arm around him, but he is trying to squirm and run away. I hold him firmly and say, "Do not push her. You would not like it if someone bigger than you came over and was pushing and hitting you."
No apology, no eye contact - he wanted to run away, and I let him.
My blood was boiling. I was so enraged and saddened. Silly, right? Probably a 3 or 4 year old. Kids don't have as much maturity or discernment or inhibition. Yes, I get that. No big deal, right? Just shrug it off - kids are kids. But I was MAD.
It makes me so mad to think about anyone being mean to Lily. To any of my kids for that matter, but especially her. And questions spiral within me. Since the boy didn't tell me (and I didn't ask), I wonder, "Why?" Why are you picking on her? Is it because she is smaller than you? Is it because she is the "new kid" as she is not usually out there with them on the playground? Is it as simple as that? Or is it because she looks different? Is it because her nose and mouth look different? Is it because she has a scar? Is it just because it would be interesting to get a reaction?
It made me mad that the world is not a good place. That even in a place I usually feel very safe, I can see how life can be for my children, and especially for my daughter. And you know what, later something similar happened again. Different culprit, though. In the middle of lunch, this time a little girl came over and kicked wood chips onto Lily. Through all of these incidences, Lily was not aware that people were being unkind to her. And I felt thankful for that, and yet fearful, too, of the day she realizes that she looks different from other people.
To be fair, I am sure that if the parents of these children had seen these things happening, they would have intervened. But you know how it is at the playground during lunch hour and how zooey it can get. I know that I cannot watch each of my children 100% all of the time and eat my lunch and talk to other moms at the same time.
When I look at Lily - I can see how beautifully she is doing. She is growing in every way. Learning to love, learning to trust. I have seen her small, malnourished, and tense body fill out and relax little by little. Her smile is infectious, and her eyes are inquisitive, bright, and look at all of us with wonder and adoration.
However, when I change her diaper, I see those scars on her bottom, and on her thighs. Again, it makes me think of how neglected she must have been to have full thickness scarring from diaper rash. How she must have been left in a dirty diaper for hours and hours. How much it must have hurt. How tiny she was when it happened. How nobody responded to her pain. And I want to just scoop her up and tell her, "No more pain, Lily. No more pain."
But then yesterday happened. And it makes me think about how I cannot promise her that. I will not always be there to protect and shield her from it.
What can I do? I know that she is the Lord's. I know that I will now always be there with her when things come up, but He will. As she grows up, she will undoubtedly encounter more questions, and teasing and cruelty because of her differences. The unkindness of human nature and this world just reinforces how we need the Lord.
And even for my other children, too. Because let's face it - we have ALL endured feeling different for any little thing. Not just what we look like, but our dress, but our interests, our beliefs. . .
Oh, and pray for me, too. Boy do I need the Lord to navigate through all of this stuff. And I am sure there is more to come. One gentleman I know with grown children once told me that through the trials and pain of parenting, "The Lord is making me into a *real* Christian."
There was a bit of comfort though.
Towards the end of lunch, I saw Lily on the blacktop, sitting joyfully with a big rubber punch ball, and with Nathan and Nathan's friend Ellie flanked on either side of her. I could hear Nathan explaining to Ellie all of the things that Lily likes to do and can do now. Ellie was smiling and nodding. They made a small, strong unit. I felt reassured and thankful.
I feel a bit better now that I have written this out. I have been interrupted twice since I began my post in the early morning when everyone was still sleeping. Now, Lily is sitting on my lap in her fleece footie pajamas. Her brothers are running around making a slide with all of the pillows and mats we have in the house. I just heard Aaron say, "And Lily can go on it, too! But it might be too dangerous!"
Matthew replied, "Just hold it up! We need more stabilizers!"
Thank the Lord for the mercies of these fun, sweet moments to encourage me through the harder parts :-).
Thursday, January 26, 2012
Happy Chinese New Year
We had a small affair over here for Chinese New Year. Lily wore her silks that we purchased for her when we were in China. I bought them in Tianjin before I even met her :-).

Smart girl already knows to smile now for the camera. See that nerf sword Aaron is holding? Lily was parading back and forth with it during dinner, but I could not get a photo. She looked like Mulan swinging that thing and wearing her Chinese silks. Oh yeah, and yes - that IS a nerf gun she is holding. And in the photo above, that is a Pokemon graphic novel she has in her hands. Sigh - she has been schooled by her three older brothers!

We had the Kus over for dinner. Dinner was lots of dumplings (from the frozen section at the local Chinese market - alas, no time for homemade ones). Then we had a worship time with our two families. Here you see the daddies and Matthew and Peter warming up.

Here is what Phil did during the singspiration time.

And for dessert - tang yuan. This is a dessert eaten on the winter solstice in China - a soup with sticky sweet rice balls.

It is the year of the dragon. Happy Chinese New Year!
I do not believe in personality traits and fortunes for the different signs of the Chinese zodiac. However, I was pleased to find out that Lily and I were born 36 years apart - making us both born in the year(s) of the tiger. Also, this gives me even more reason to think of her as "Tiger Lily."
Smart girl already knows to smile now for the camera. See that nerf sword Aaron is holding? Lily was parading back and forth with it during dinner, but I could not get a photo. She looked like Mulan swinging that thing and wearing her Chinese silks. Oh yeah, and yes - that IS a nerf gun she is holding. And in the photo above, that is a Pokemon graphic novel she has in her hands. Sigh - she has been schooled by her three older brothers!
We had the Kus over for dinner. Dinner was lots of dumplings (from the frozen section at the local Chinese market - alas, no time for homemade ones). Then we had a worship time with our two families. Here you see the daddies and Matthew and Peter warming up.
Here is what Phil did during the singspiration time.
And for dessert - tang yuan. This is a dessert eaten on the winter solstice in China - a soup with sticky sweet rice balls.
It is the year of the dragon. Happy Chinese New Year!
I do not believe in personality traits and fortunes for the different signs of the Chinese zodiac. However, I was pleased to find out that Lily and I were born 36 years apart - making us both born in the year(s) of the tiger. Also, this gives me even more reason to think of her as "Tiger Lily."
A Couple of Cool Vids
I only know about awesome youtube videos because people send them to me or I see them on people's blogs. These two are from a couple of blogs that I read. I liked them so much I am sharing them on my blog as well. Let me know what you think!
Tuesday, January 17, 2012
A day in The life of Lily
I know I have other children, but she is the subject yet again!
She and Aaron went on a wagon ride in the backyard this morning.
Lily is just barely starting to be interested in books. Well, interested might be overstating it. She now tolerates and will look at board books for just a minute or two. She has a pair of Robeez type shoes that she is wearing today that have butterflies on them, just like the last page of The Very Hungry Caterpillar (blogging from my phone so no underline unfortunately).
We went in the afternoon to a friend's house for Latin, and after "class" Lily decided to get into her brothers' books and do some "schoolwork" too.
And lastly, it is tiring to be so engaging and adorable and to keep up with 3 brothers. She looks so peaceful sleeping in her carseat.
She and Aaron went on a wagon ride in the backyard this morning.
Lily is just barely starting to be interested in books. Well, interested might be overstating it. She now tolerates and will look at board books for just a minute or two. She has a pair of Robeez type shoes that she is wearing today that have butterflies on them, just like the last page of The Very Hungry Caterpillar (blogging from my phone so no underline unfortunately).
We went in the afternoon to a friend's house for Latin, and after "class" Lily decided to get into her brothers' books and do some "schoolwork" too.
And lastly, it is tiring to be so engaging and adorable and to keep up with 3 brothers. She looks so peaceful sleeping in her carseat.
Golden
I look forward to this every day...
When all the babies are asleep.
I get to be alone with my husband,
Eating something sweet (remains of a brownie in the picture)
Knitting something special,
And watching Netflix. Right now our favorite is Star Trek the Next Generation. We are watching in order from season.1 episode 1 and so on...
I end up staying up wayyy past my bedtime. But it is so worth it :-).
When all the babies are asleep.
I get to be alone with my husband,
Eating something sweet (remains of a brownie in the picture)
Knitting something special,
And watching Netflix. Right now our favorite is Star Trek the Next Generation. We are watching in order from season.1 episode 1 and so on...
I end up staying up wayyy past my bedtime. But it is so worth it :-).
Friday, January 13, 2012
Catching Up
The biggest thing that keeps me from blogging is uploading photos. It is such a drag :-(. I get behind and then unmotivated. And for some reason when I upload photos on blogger, they upload in backwards order - making it hard to compose and format my post. Is it just me? Maybe I am missing something? If you have a clue about an easier way to do things, please let me know.
On Monday Lily had an appointment with the developmental pediatrician. Please understand that we made this appointment like the week after she came home at the end of September. January 9th was the earliest appointment! It's all good though as it allowed Lily to get more settled with us before trying to assess her development and any delays that she may have. The news is good, she is pretty much on target in most areas, but her speech is at the level of a 16-18 month old (she is nearly 22 months old) which we expected. Also, the ped found that Lily has low muscle tone and recommended that we sign Lily up for swimming or gym class. We will have to see her again in the summer time.
But yay! My girl can drink with a straw now! And she can drink from a regular cup without half of the liquid coming out of her nose! We have a follow up appointment with ENT on the 31st to check on her ear tubes.

In other news, Dave fixed his guitar! He is so proud of himself. Here he is playing it (and I am so happy to hear the sounds of him playing a little every night). The impetus for fixing it was being able to help out with a bit of singspiration at Friday night Bible Study, which incidentally is where he and the boys are right now. Wonder how it is going. . .

When I took Lily to the developmental ped on Monday, I dropped the other kids off at a dear friend's house. They made freshly squeezed orange juice. Don't you love Aaron's shy pose here?

They started squeezing more oranges by hand when I arrived. And here is Nathan and Ellie (my friend's daughter) working together to make orange juice. "Put all of your weight on it, like this!" Ellie is telling Nathan.

And I have found out that some people read this blog to keep up with Dr. Phil. So for all of you, here is a cute picture of Dr. Phil!
On Monday Lily had an appointment with the developmental pediatrician. Please understand that we made this appointment like the week after she came home at the end of September. January 9th was the earliest appointment! It's all good though as it allowed Lily to get more settled with us before trying to assess her development and any delays that she may have. The news is good, she is pretty much on target in most areas, but her speech is at the level of a 16-18 month old (she is nearly 22 months old) which we expected. Also, the ped found that Lily has low muscle tone and recommended that we sign Lily up for swimming or gym class. We will have to see her again in the summer time.
But yay! My girl can drink with a straw now! And she can drink from a regular cup without half of the liquid coming out of her nose! We have a follow up appointment with ENT on the 31st to check on her ear tubes.

In other news, Dave fixed his guitar! He is so proud of himself. Here he is playing it (and I am so happy to hear the sounds of him playing a little every night). The impetus for fixing it was being able to help out with a bit of singspiration at Friday night Bible Study, which incidentally is where he and the boys are right now. Wonder how it is going. . .
When I took Lily to the developmental ped on Monday, I dropped the other kids off at a dear friend's house. They made freshly squeezed orange juice. Don't you love Aaron's shy pose here?

They started squeezing more oranges by hand when I arrived. And here is Nathan and Ellie (my friend's daughter) working together to make orange juice. "Put all of your weight on it, like this!" Ellie is telling Nathan.

And I have found out that some people read this blog to keep up with Dr. Phil. So for all of you, here is a cute picture of Dr. Phil!
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